Physical vs. Mental.

This particular subject I could talk about for days. It truly gets me steaming angry when people mistake physical differences from mental. Great example from today I'll share with you. When I leave school, my bus leaves like five minutes earlier because I right a SPED(SPECIAL ED) bus. If I could I would change this, but I can't.. there is no buses for people in wheelchairs who are not SPEDS because appearently everyone in a wheelchair is a SPED. There I go, ranting and raving.. so back to the story. So when I leave to get on my bus there is usually a person waiting there for me and the two other SPEDS. I told her not to wait for me many times because I do not need a person to walk me to my freaking bus right out the door. But no, she waits for all of us and let's us out the door and watch us get on the bus. I did not know that watching capable kids board a bus was a part of her job description and if it is, ladies and gents.. your tax dollars are being spent just wonderfully! When people first meet me, they have 100000 assumtions. I don't even want to know some of them, but they most likely go like this. 1. She doesn't go out. 2. She is a SPED. 3. She's a nerd. When I first meet anyone, I throw out a few choice swear words. I don't do this to be rude or anything.. but it let's them know hey, she might be older then I expected. My school especially! My mom has battled with the school, the board, and everyone about them getting the hell off of my back. Last year my friend was taking me to that bathroom because I wouldn't let any nurses or aides help me. When she found out, she called my mom in a frantic voice informing my mom of the "serious situation." That has to make you laugh. So, my mom told her that my friends have always helped me and they are more capable and limber then some old ladies. It then spun into a huge battle. My mom battling for the rights of my privacy and the school defending their liability or whatever. After threats, and heated discussions and meetings they said they would agree with a don't know don't tell kinda thing. So basically they are going to say they told me not to have a friend help me, but I do anyways but they "don't know." Whatever, I hate that school. Remember it's easy to make assumptions, but get to know the person more first because they might have something more to offer that you'll pass up.

The countdown is officially on!

5 MORE DAYS! On Sunday, the 20th I'm going on a Carnival Cruise to the Caribbean! I'm so incredibly pumped. I can't wait for that one hint of bright, warm sunshine to soak in my pale skin. My mom, dad, grandma, and best friend Paige are coming along. I have flown in a plane many times before, but my number one worry is always my wheelchair! They have to lift it on to the conveyor belt where all the luggage is loaded in the belly of the plane! This conveyor belt is just about the width of the wheels on my wheelchair, and watching those men not know exactly what they are doing and knowing my wheelchair has a chance of falling off the belt is nerve racking. I'd compare it to someone holding a running saw an inch away from your legs, because you need those.. don't ya? Thanks god, every year that I fly MidWest, they get better and better with handling me boarding the plane. This year should be a piece of cake!

I Made The Cut: Round 2 Of Charlie Sheen Intern Search - Christian Wolan - The Green Machine - Forbes

I Made The Cut: Round 2 Of Charlie Sheen Intern Search - Christian Wolan - The Green Machine - Forbes

Hahahah Charlie Sheen.. wow. WINNING!

Pet peeve!

Okay sorry I'm posting this so soon after my two other posts, but I cannot implement how much I hate the word DISABLED. Get rid of the dis and you have disABLED. That's more like it!

TT's wheelchair pic.

I told you guys I would take a pic of TT in my wheelchair like she always is.. so here it is! So cute! (:

Spreading awareness.

Today just a couple of hours ago, when I was at school we had a pep-rally thing for ST. Baldricks. I'm completely supportive and am happy about how much money they're raising. But it seems like schools these days only focus on cancer related things/fundraisers. MD(muscular dystrophy) is totally unknown to any students. I know many people at the school that have family with MD or know someone with it. Many schools actually recruit counslers for MDA summer camp that I attend, but no.. not our school. Even if they didn't dedicate an entire pep-rally but maybe like selling the bracelets and donating the proceeds. I don't know, it just angers me once in a while because there needs to be more awareness! Wear the wheelchair heart on your sleeve.. check it out here. Buy something, spread awareness!

Click here ----> 3elove!

Shopping bust.

Being small is so annoying sometimes, especially when I want to go buy new clothes. I can't ever want to buy something specific because you can almost guaruntee I won't be able to find it anywhere. When I go shopping it works somewhere along the lines of luck of the draw. Most places I shop is at Abercrombie Kids, Forever 21 GIRLS(yes online they have a link for young girls now!), Target, and Pacsun. Abercrombie kids, mostly everyone grew out of going into high school, but there clothes fit me perfect and are not completely childish. Another great trick I use that works good for clothes that are a bit to big, is saftey pins! I just saftey pin the straps or the material in the back and it fits great! I had to do that for homecoming last year. I didn't buy my dress until the day of homecoming and I found a dress I wanted in the juniors section. I beileve it was a size 3... in other words like 6 sizes to big. I'm a kids size small or 10ish. I went home and put it on and it was swimming on me, but with like 3 saftey pins, it fit perfect! I'll show you a picture.

T.T's wheelchair.

For all of you who don't know TT, let me introduce you. She is my little tan ball of love. She is a full bread chihuahua. We adopted her about three years ago from a animal shelter. She was very skiddish and nervous. Now she is this fireball of energy not to mention her mad hops! She can jump literally 3 feet in the air. She always hops right up on my lap when I get home from school! Now that you know some backround info, let me tell you about TT and her wheelchair. Every day when I get into the bath to take a shower, she hops in my wheelchair and sits their completely content. If the door is closed, she will persistantly scratch the door until she gets her way. I know in my previous blog I mentioned my new wheelchair that is unoccupied due to my lack of comfort in it. It's just sitting in my house by the desk in the corner. We put a blanket it on there one day just randomly. Next thing we know, TT is laying there taking a little nap. Now more often then not you can find her just sitting in that wheelchair. Me and mom were talking today and we both agree that she thinks she should have a wheelchair to because of me. Kinda crazy, but so cute! I have to take a picture and put it up here! I will try to soon! Anyways, heres a picture of me and her!

Softi's

Softi's are the best candies in the world! It's a soft taffy flavored candy that is from Germany. You might wanna know how I discovered this German candy. I'm in German III at school and we sell them every year. Each year I always volunteer to sell them for only one reason... so I can EAT ALL OF THEM! The entire box is legit usually gone the next day from me eating all of them. Then I end up having to pay for the entire box. They are so addicting and everyone loves the time of year when we sell them. If you wanna buy them online, click this link!
Click her for Softi's!

The Midwest sucks.

I need to move to the west coast like ASAP. I plan to go to college at ASU. My grades aren't that reflective of my larger then life ambitions. I hope maybe ASU will see that and like totally accept me. People with weak muscles do not belong anywhere near the cold. We also hate wearing jackets. They are so bulky and just a pain. Then our hands freeze up and it's hard to drive! I can go on and on about this shitty weather, but bottom line is...
IM OUTA HERE IN ONE YEAR! (:

Never let the fear of striking out keep you from playing the game.

^ That quote is from a Cinderella Story, but I love it!

In Vegas in a wheelchair cab. Everything in the west is accessible!

Halls of hell.

If you went to my high school, you would totally be on the same page as me right now. The hallways are terrible! Certain people... cough, like to stagger in the halls and or fight/push each other in the narrow hallways during passing periods. For another student passing by, the worst thing that might happen is they get nudged. For someone like me, I'm not as "lucky." Since I'm about waste level and harder to see, I get people that fall on me. It irritates me tremendously, as I swear under my breathe going past them. I'd say the worse thing that has happened to me in the hallway was last year. I was going fast down the hallway and a kid was running out of his classroom and collided with me going past his door quite fast. He fell on top of me and had his hand over my joystick or control or whatever you wanna call it. He ran me into the hard brick wall of my hallway. I do not keep my foot plates down, so my feet dangle. Let me tell you now, my feet are very sensitive and have gotten sprained numerous times leaving me in excruciating pain. You can guess what happened from here. My feet jammed into a brick wall going very fast. It was on an angle so luckily my one left foot got to blunt of the impact. I wanna say that was one of the worst pains I have ever had. My foot then got very swollen and I could not move it for weeks. During all this my books also flew off my lap everywhere. After the kid fell on me, he simply got up and walked away. Some nice girl in the hallway helped me pick up my books. Excuse my French, but shit like this really gets me angry. The kid could not say sorry or even help me get my books or see if I'm okay? I suppose that is my thought of the day on how I feel about my high school "hell halls."

Liddol me.

I don't look too much different. This picture was when I was in 8th grade at a mixer(dance). Hahaha.

The opposite sex..

I was eventually going to make a post regarding one particular subject. Because this subject was brought up at my lunch table today, might as well make this well it's fresh in my mind. Somehow relationship were suddenly topic of conversation. A kid at my lunch table said something about me dating another person in a wheelchair and me finding my "wheelchair love" and started laughing. I did laugh, but then I them I would never date another person in a wheelchair. It's not to be mean or offend anyone. It is just my preference. This get's the questions going again.. YES I have had boyfriends. YES I have kissed boys. It is harder for me to have a relationship with a boy just because none are willing to date the girl in the wheelchair. This is referring to most of the high school population of boys that are just wanting a piece of ass. In a sense it is more beneficial to me in the way if a guy is with me, it is because he wants me, as a whole... not just for sexual reasons like most of the girls getting played and ruining their lives getting impregnated. Hahaha, real talk though in high school I have only had one boyfriend, but I'm not in rush or anything. High school boys immature anyways. Well, me and my friend got a LOT of homework to do.. so remember I'm not a Martian.. I just roll on wheels.

New wheels.

New wheelchair will look like this, but that back is smaller.  I'v had it for a while now, but the adjustments are not right! I'm currently working with UIC to get it right so all you can see the amazing 35,000 wheelchair. In case you where wondering that number is accurate. I know it's crazy!

Let me introduce myself.

My name is Alex. Sound like an average kid aye? Nah, I'm a bit more COMPLEX. I have an electric wheelchair that I use to get around. The number one reason I'm making this blog is because so many people ask me so many questions as my wheels seem to intrigue them into wanting to know more. Before any questions are asked, let me clear up the one most common one I get.. 

Q: DO YOU SLEEP IN YOUR WHEELCHAIR.

A: No, no no no no! Hahah, I mean, I could.. but it would not be exactly the picture of comfort.

Let's see what else I can let you know. . . 

Well your next questions is usually wanting to know what my "disease" is. So, I'll do my best right now to explain in a simple way. I have a type of MD(Muscular Dystrophy) called SMA II(Spinal Muscular Atrophy type 2). I could go into detail, but for the sake of time I'll tell you basics. It basically makes my muscles much weaker then yours. With weaker muscles comes more complications. Every single muscle is weaker: swallowing, hands, neck, legs, everything. I hate when people try to give me sympathy, cause I'm not looking for it nor do I need it. I love being in a wheelchair and it makes me who I am.. a normal teenager with extra opportunities. (: I'll keep you updated. Feel free to ask any questions!

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